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(For those just joining us, here’s a brief recap of major issues that arose between January 2000 and April 2001: Red facial rash; swollen, inflamed gum tissue; fatigue; increasing weakness in my legs; weight loss; significant hair loss with bald spots; and the new development of hard white lumps under my skin that caused severe pain. The tentative diagnoses were systemic lupus erythematosis, Raynaud’s syndrome, and hypothyroidism.)

A Photo and a Bag

It was October 2001 and the time had come for me to renew my driver’s license. I adorned myself with a hat to hide the humiliating appearance of my head. The red rash on my face had worsened and my nose was swollen. I had cut my hair to get rid of the straggles but it looked scary anyway.

Mom took me to the DMV. When picture time came I pleaded with the woman to let me leave my hat on, but no, I had to take it off. There I was with no hat, flat sparse hair, red rash and swollen nose. To top it off I had a mark on my forehead from the hat rim.

The woman behind the camera was ready to shoot. I was ready to die. I fought to hold back the tears as I cracked an obligatory smile. Click. Beautiful. For nine years I’ve had that license in my wallet. Fortunately, I haven’t had to pull it out very often. I guess that’s why I never thought to get the photo retaken. Besides, I was too sick to care.

The really sad part about my appearance at the time is that I looked like the actor Michael Keaton as his character Beetlejuice, especially when my hair was freshly washed and stood straight up. That was my perception which might have been slightly distorted through the lens of a broken self image.

On a lighter note, through the pain and misery there were moments of relief and fun. When Halloween arrived, my mother decided that she, my sister, my aunt and I should go trick or treating through the townhome complex.

Back then Wal-Mart used grocery bags that had big smiley faces on them. Mom got each of us a Wal-Mart bag to put over our head. I had no qualms about putting a bag over my head after the incident at the DMV so I willingly went along with the plan.

My only concern was that neighbors might have thought we were killers coming to get them since we weren’t exactly children. And instead of handing us treats they’d call the cops and we’d spend Halloween in jail. In light of this we only rang doorbells of those neighbors my parents knew.

When we rang the first doorbell a man answered. His eyes expanded, his eyebrows rose, his mouth opened and before he could say anything my mother announced, “Hi Bill. It’s Elaine. Trick or Treat!” The shock took a moment to lift. Then a glimmer of light crossed his face as recognition of a name he’d heard before landed on his lips, “Oh, Elaine. I wondered who was at my door. The Wal-Mart bags are cute.”

Whew. See what I’m saying. That was a close call. Bill’s immediate reaction was exactly what I’d feared. Fortunately Mom spoke up before something really scary could happen. To avoid frightening the entire complex we only went to two other houses. These folks appeared equally stunned. At the last house we took off our bags and had a good laugh.

I find it fascinating that during some of the worst times in my life I’ve had some of the brightest moments. That’s God’s way of easing a heavy burden and showing me how to live with peace and joy in the midst of suffering. Only He can make that happen.

THE JOURNEY CONTINUES:

Stay connected for more. There is joy and blessing woven through the trial. But those who suffer he delivers in their suffering; he speaks to them in their affliction. Job 36:15

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Life Happens – Jesus Answers is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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Spirit Message

When I discovered the bald spots on the back of my head I still had a red rash on my face, sensitivity to cold, numb fingers and toes, and swollen gums. Through the pregnancy and miscarriage none of these symptoms lifted. I merely took a detour that weakened my immune system further. The questions I posed to God about this trial wouldn’t be answered for years.

Not fully comprehending why all this was happening, I petitioned the Lord, “Father, I realize you’re allowing this trial for a reason because everything you bring into my life has purpose. I don’t know what’s in store, nor do I know how long it will last. Please let it last as long as necessary so I learn the lesson this time and don’t have to repeat it later.”

I didn’t pray that prayer expecting a response – at least not immediately. Yet I knew that in the process of walking this path the Lord would honor my request. I knew somehow I would persevere. I knew I would emerge a better person. But I was stunned to hear what the Holy Spirit whispered to my heart, “It’ll last about five years.”

Whoa. Did that really just happen? I couldn’t recall a time when I’d received such a strong, clear message from the Spirit. I stood staring at the wall in my bathroom hesitating to believe what I’d heard was real. It came so far from left field that it had to be God. I wasn’t on medication. I wasn’t making it up. The message clearly came from the Spirit.

At the time I didn’t know how great a gift this message was. How often does God clue people in to the duration of their suffering? I’ve never heard another person share anything like that. Maybe they’re afraid people would accuse them of creating a story. Why would someone make it up? What would be the point?

I never shared my blessed revelation with anyone, but that wasn’t a conscious decision, I just didn’t think about it. This precious jewel from God was intended to be kept between the two of us, hidden in the recesses of my soul. It was a gift He planted deep within designed to see me through the darkness ahead.

In the coming months my symptoms held steady but I was too weary to cook or keep house. My primary care doctor had no real answers and the rheumatologist remained clueless. In late summer 2001 Steve was informed he’d be going to Afghanistan.

Okay, now that was a place I definitely couldn’t hitch a ride to. Was it time for another road trip? Where would I end up this time?

THE JOURNEY CONTINUES:

Praise be to the God and Father of our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead, and into an inheritance that can never perish, spoil or fade–kept in heaven for you, who through faith are shielded by God’s power until the coming of the salvation that is ready to be revealed in the last time.

In this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that your faith–of greater worth than gold, which perishes even though refined by fire–may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed. 1 Peter 1:3-7

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Life Happens – Jesus Answers is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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Unexpected Discovery

Each day I sat propped up on the bed reading, journaling, and praying. An inviting picture hanging on the wall across from me beckoned to me like a memory luring me back in time. Two white, wooden beach chairs faced forward toward the ocean. Seated on one was a woman wearing a white sun hat with a blue ribbon tied in a bow delicately draping the brim. To her left was a small grove of lacy green trees gracing the scene. As I gazed at the picture I felt warmth from the sun enveloping me with comforting serenity. Memories of Southern California summers breezed through my mind, and for a moment, I missed home. I spent hours studying this scene, wishing I were in it, wondering what my future held.

While the picture on the wall was a silent companion drawing me to another place, God was my ever-present source of comfort and hope. He has often used materials from In Touch Ministries to encourage me. One particular study met the cry of my heart as my condition worsened: Advancing through Adversity by Dr. Charles F. Stanley. God had strategically placed this resource in my hands as a light to guide me through the dark tunnel ahead.

It was March 2001 at Fort Jackson, South Carolina, when the adversity train led me down a new track. Sitting quietly reading I felt an itchy sensation on my bare arms and thought there were bugs in the room. I looked down to see strands of hair that had jumped off my scalp as if retreating from an enemy. When I worked conditioner through my hair in the shower, strands wrapped around my hands like a glove. Using my thumb, I pushed off a golf ball sized wad of hair each day and filled a trash can each week. Along with hair loss came increased fatigue, breathlessness, nausea, loss of appetite, and believe it or not, a severe distaste for chocolate — the most puzzling symptom of all. I assumed these unfortunate signs were members of the lupus family. According to what I read they belonged.

The day came when my assumption proved false. While getting dressed I looked down and noticed my abdomen protruding. As I stood sideways next to the mirror and mentally recalled my new symptoms one by one it dawned on me … I had missed two periods. What I had been experiencing the previous four weeks wasn’t lupus at all. I was pregnant.

Questions whirled around me like wind gusts trying to knock me down, “Will my immune system attack the fetus? Am I healthy enough to do this? I don’t even have a definite diagnosis yet. God, what are you up to?” Steve’s classes were about to end, we’d drive back to Tennessee, and he would head off to Fort Leavenworth, Kansas, for the last phase of school. We made arrangements for me to stay with a friend if necessary.

In the meantime, I kept the little discovery to myself as we prepared to drive back to Fort Campbell, Kentucky. I marveled at the fact that neither Steve nor I knew I was pregnant during the entire month we were together. It was God’s secret until now, and I couldn’t help but wonder what was around the corner. It’s a blessing that I didn’t know in advance.

THE JOURNEY CONTINUES …

Welcome back to Life Happens – Jesus Answers in 2010. For those of you who are new to this column, I’m in the process of sharing my personal journey of transformation that has occurred over the last decade. You can get caught up from the beginning of the journey by accessing previous entries in Life Happens – Jesus Answers under “categories”.

Remember, in this new day of a new month in a new year and a new decade, God is doing a new thing, and He always has the best in mind for you no matter what your circumstances might be (Isaiah 43:18-19; Romans 8:28-30). People change and things change, but Our Lord is steadfast, faithful, and unchanging. As you walk with Him this year, rely on the truth of Scripture. Rely on His consistent love and grace. Rely on His strength and stability. But most of all rely on Him.

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Life Happens – Jesus Answers” is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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Insults, Dippy Doctors, and a Road Trip

During my mysterious symptom accumulation, I landed in the office of a new primary care physician whose kindness and sensitivity were astounding. Not! After hearing me talk about my strange symptoms and the tentative diagnosis of “lupus” given by previous physicians, he examined me and asserted, “I think you have fibromyalgia which isn’t recognized by the medical community as a real condition. You are depressed and your symptoms are largely psychosomatic.” I replied, “You think these symptoms are in my head?! You think I’m making them up?” I was insulted.

How is it that I was given a fairly accurate diagnosis in Germany, then ended up at Fort Campbell with doctors who couldn’t agree? Part of the problem is that many autoimmune diseases mimic each other. Getting a final, accurate diagnosis is difficult until you have enough symptoms that fall into a certain category. It’s even harder with mixed connective tissue diseases because they can affect every part of the body. Ultimately, to be considered official, my diagnosis had to come from a rheumatologist — a doctor who specializes in autoimmune diseases like rheumatoid arthritis, lupus, and others. 

Unfortunately, specialists like these can be hard to find. The closest one who was available to see me in a reasonable amount of time was located an unreasonable distance away … in Bowling Green, Kentucky. Oh, it was only a two-hour drive. And, it didn’t matter that this doc spent more time in the hallway talking to his nurses than he did with me in the examining room, did it? Nor did it matter that he was from the Middle East and I couldn’t understand most of what he said. Although irresponsible of him, did it really matter that he offered me samples of prescription drugs for conditions I didn’t even have? No, not really. After all, to him I wasn’t a human being with feelings. I was a number preceded by a dollar sign. He had visions of greenbacks dancing in his head.

Drives, distances, and dollar signs aside, at least this specialist guessed that I probably had some kind of autoimmune disease. Wow, what a revelation! His guess was nothing new and he arrived at it without much investigation. As a result, I still didn’t have a definitive diagnosis from a rheumatologist. I suspect this dude gladly welcomed me to his office for as long as I would endure his malpractice. I visited him a couple more times then gave up.

Toward the end of February Steve traveled to Fort Jackson, South Carolina, to attend school. By early March my condition worsened. Cooking, cleaning, and shopping rendered me breathless and exhausted. I wasn’t eating enough and spent more time in bed. Something needed to change or I would deteriorate. So, I placed Bridgette, our beagle, in a friend’s care and managed to hitch a ride to Fort Jackson with a military family. They “just so happened” to be heading the direction I needed to go. Yeah, right. It was no accident. God is totally in control of everything. This was just one example of the Lord’s timely provision along this journey.

While Steve was in classes I had plenty of time to read and pray. Each day I sat in a cozy chair by the window and looked out toward the evergreens in the distance. They reminded me of the trees at Ramstein Air Base in Germany. It was beautiful there. I love God’s creation, and I dreamed of one day living in a place that had beautiful trees.

In the meantime, resting had top priority while new symptoms grabbed my attention. What I had experienced thus far paled in comparison to what lie ahead. This journey was about to lead me down Heartbreak Road.

TO BE CONTINUED …

Women of PWOC, stay connected! Life Happens – Jesus Answers will resume with the “Journey of Transformation, Part 6,” on Thursday, January 14, 2010.  The Blog will be featuring posts on Thanksgiving and Advent over the next 6 weeks.  Be sure to enjoy them and share them with your family and friends.

During this season, be sure to cherish the precious moments you have with your families, and reflect on the grace and provision that God extended to you in 2009.

Happy Thanksgiving, Merry Christmas, and Happy 2010 to all of you! When you’re walking through the commissary or down the street in your neighborhood, wish everyone you meet a “Merry Christmas!” After all, it’s only because of Christ that we have a reason to celebrate.

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Life Happens – Jesus Answers” is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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