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A Shock in the Mirror

My visit with the rheumatologist in Bowling Green, Kentucky, is hardly worth mentioning. He was sorry to hear about my miscarriage, but he offered no relief from the lupus or hair loss. And his carelessness with prescriptions made me uneasy. If I had actually taken the Vioxx he tossed at me back in February, which typically is prescribed for rheumatoid arthritis and not lupus, I would have blamed myself and the medication for the miscarriage. No doubt I would have blamed the doctor too.

I see God’s grace in this.

My previous experience and knowledge with medications gave me the wisdom not to take the Vioxx. In subsequent years I saw law office television ads naming Vioxx as a villain in countless stories about horrific side effects. I had been spared unrelenting torment.

Soon June 2001 would be upon us and I had lost so much hair it looked sparse and straggly. To shield my waning self esteem from further humiliation I began wearing ball caps. When Steve returned from Fort Jackson he didn’t mention the condition of my hair and I wasn’t aware of its severity.

When Steve’s birthday arrived in late June I wanted to look pretty for him so I took time getting ready. It’s hard to believe that during all those months since February I hadn’t considered checking the back of my head.

Until that day.

I turned my back to the sink and held a mirror with my left hand while examining my hair with the right. Shock pulsated through my heart. I was transfixed. Anyone walking past would have thought I was a statue.

How could this be? Where there once was beautiful sandy blonde hair there now appeared three bald spots the size of golf balls. Steve entered the bathroom and I showed him the back of my head. He hadn’t noticed it before. Really?

I questioned, “What can I do? How can I cover the spots? I can’t wear a ball cap with a dress!” He suggested I try one of my summer hats. Although the idea sounded abhorrent it was either that or stay home.

I slowly walked into the bedroom to get a pair of earrings and the tears broke loose. As I reached for my jewelry pouch Steve came over to console me. With despair I cried, “I wanted to look pretty for you but I’m not pretty anymore.” He responded with a very male comment, “It’s okay. I don’t love you for your hair.”

I returned to the bathroom and struggled unsuccessfully to style the straggles. And even though the hat covered my scalp, it couldn’t erase the horrifying image I’d seen in the mirror. From my perspective the evening was marred by a new thing to grieve. Never before had I felt so ugly.

I began to wonder what all this was about. Why was it progressing? Was God punishing me? As far as I knew I wasn’t anymore sinful than any other Christian. I felt singled out. No other spouses in my military circles were enduring anything remotely close to this. Would I have to walk this road alone? How long would it last? How bad would it get?

Only God, and time, would tell.

THE JOURNEY CONTINUES:

Have you ever walked a path that seemed to have no clear direction? Did you feel as though you were suffering for nothing? During times when God brings perplexing circumstances into our lives it helps to adopt a God perspective or an eternal perspective. Remember that He sees things much differently and has a plan involving the entire universe.

An important question to ask during trials is, “Father, what can I learn from this?” Then wait for His answer.

In the meantime, read Isaiah 55; 1 Peter 4:12-19; and bury your face in the Psalms.

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Life Happens – Jesus Answers is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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Doctor! Doctor!

In July 2000 we packed our household goods, cleaned our apartment, moved into the Ray Barracks guest house, and eagerly anticipated our PCS to Fort Campbell, Kentucky. My “lupus” symptoms hadn’t changed. As far as I could tell, the condition remained isolated to my gum tissue, and I kept hoping it would go away.

By the end of August we were settled into our little rented house in Clarksville, Tennessee, and I began exercising. I felt fine and seemed relatively healthy except for the red rash that appeared across my nose and cheeks. I looked like Mrs. Tomato Head, especially after exercising. Needless to say, I was embarrassed to be seen at the fitness center.

In September the skin on my hands became extremely sensitive. It felt like third-degree sunburn each time I handled the window shade cords or attempted to tie my shoelaces. Any object with a ridged or slightly rough texture caused a burning sensation. When October brought three raised red bumps to my forehead, it was time to get this mysterious disease investigated more thoroughly. Unfortunately, my first few visits to primary care doctors and physicians’ assistants (PAs) resulted in frustration and serious doubt about the medical profession. The first doctor told me the skin changes would subside in a couple weeks and not to worry about them. One PA told me I had rosacea (reddening of the facial skin that usually occurs in older adults). My eyes got big, my anger rose up, my mouth wanted to yell, “You have got to be kidding me! This isn’t rosacea! You’re not serious, are you?” Instead, I simply asked, “Are you sure this isn’t something more like lupus? After all, that’s what other doctors have suggested.” Then she shot a wide-eyed gaze at me as if I had no business questioning her. Gimme a break. She couldn’t have been more wrong.

Eventually I landed in the office of a dermatologist who actually seemed to give a rip. Results of a skin biopsy led him also to “suspect” lupus. At this stage it only appeared to be discoid lupus – a less serious form that remains isolated to the skin. He did warn me, though, that it could become systemic, meaning full-blown Systemic Lupus Erythematosus (SLE). Hadn’t I heard that before from a certain periodontist in Hanau, Germany? Hmmm … I vaguely recall … Yes! Now two different doctors agreed with each other. In order to halt the progression of the disease, the dermatologist prescribed a drug called Plaquenil, an anti-malarial drug, interestingly enough. Did it help? I don’t remember, but I didn’t get malaria! Whew. Close call.

Following one of those uplifting dermatology appointments, I went to the restroom and examined my face in the mirror. Fear of the unknown swirled around within me as denial rose to the surface and evaporated. Reality was staring back at me. I inquired of the Lord, “Father, what’s happening to me? Is this rash going to scar me for life? Will it ever go away? Will I ever be the same? How long will this last?” The reflection in the mirror was of someone I never saw before and didn’t care to see repeatedly. I recalled the days when people complimented my skin. After this, could anyone bear to look at me?

God had the answers to my questions, and He chose to reveal them one step at a time, one symptom at a time, one day, one month, and one year at a time. The trial before me would be treacherous. It’s a good thing I didn’t know what was next.

TO BE CONTINUED …        

Women of PWOC, stay connected! In the coming weeks I will continue sharing my Journey of Transformation from being wounded and angry to healed and thriving. My purpose in sharing this story is to glorify God, to show the truth about Him, to display His goodness and provision in the midst of suffering, and to give you hope. No matter where you find yourself at this time in your life, be assured that God is trustworthy and faithful despite how you feel about Him. He does have good plans for you. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future” (Jer. 29:11).

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Life Happens – Jesus Answers” is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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