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Confirmation and Concern

The first week of April 2001 Steve and I returned to Clarksville, Tennessee. Within days he headed west to Fort Leavenworth, Kansas, for the last phase of school. Although friends invited me to stay with them, I chose to stay home. Besides, I had news I wasn’t willing to share yet, and I needed time to myself.

I visited my primary care doctor to verify the pregnancy, and I clearly remember the moment he returned to the exam room with test results. He handed me the printout so I could see it for myself — “Positive for HCG” — the pregnancy hormone. This doctor, the same one who suggested my autoimmune symptoms were psychosomatic, now asked an important question: “Is this good news?” “Yes,” I replied, “but I don’t know what to think. What about the lupus?” He attempted to reassure me that many women with lupus deliver healthy babies and he added a sincere “I’m happy for you.”

I walked through the hospital out to the parking lot, opened the door to our Plymouth Voyager minivan, climbed inside … and sat there. Bewildered, I prayed, “Lord, I’m happy but also concerned and confused. The timing is strange. This would be good news under better conditions, but I just don’t know what to think.”

At 35, with risk factors and a mysterious autoimmune disease, I was referred to an OB/GYN who specialized in high risk pregnancies. During the days leading up to my appointment, I read through my Merck manual to learn more about pregnancy risks in case something happened. At this point, Steve still didn’t know about the pregnancy. I wanted to tell him in person and expected the opportunity to arrive in subsequent weeks.

On Friday, April 13, 2001, I arrived at the OB/GYN’s office. I sat in the waiting room looking around at the other pregnant women, some with husbands by their side. I was the oldest in the room and felt conspicuously alone. This wasn’t the first time I was alone during a significant event nor would it be the last. So, I experienced the wonder of prenatal sonography by myself.

Floating around in amniotic fluid inside my womb was an active baby at 10.5 weeks. I could see the shape of the head, eye sockets, nose and mouth. The little arms were lifted up with hands together in a praying position. The heartbeat moved up and down gently. The legs and feet were clearly defined, kicking energetically as the baby rolled back and forth. I sensed he was a boy because he had a wide, strong back. Everything looked normal but his frantic kicking concerned me. The doctor said some babies are really active. But when he pointed out that the fetus had developed only to 9.5 weeks my heart sank. Showing no signs of concern, the doctor took a couple quick sonogram pictures and my appointment was over.

As I walked past the doctor’s desk toward the door, he spoke, “This is going to be a healthy pregnancy. Everything is going to be fine. It’s going to be good.” His tone was dull and his words were flat. It was as if he was trying to convince himself while mindlessly uttering false hope at me. I turned to look at him but he didn’t make eye contact. The incongruence of his words, tone of voice, and facial expression betrayed him and I wondered what he really thought. Still, I believed that if there was something I needed to know, he would have told me, and his words evaporated … until later.

THE JOURNEY CONTINUES …

Welcome back to Life Happens – Jesus Answers in 2010. For those of you who are new to this column, I’m in the process of sharing my personal journey of transformation that has occurred over the last decade. You can get caught up from the beginning of the journey by accessing previous entries in Life Happens – Jesus Answers under “categories”.

Remember, in this new day of a new month in a new year and a new decade, God is doing a new thing, and He always has the best in mind for you no matter what your circumstances might be (Isaiah 43:18-19; Romans 8:28-30). People change and things change, but Our Lord is steadfast, faithful, and unchanging. As you walk with Him this year, rely on the truth of Scripture. Rely on His consistent love and grace. Rely on His strength and stability. But most of all rely on Him.

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Life Happens – Jesus Answers” is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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Doctor! Doctor!

In July 2000 we packed our household goods, cleaned our apartment, moved into the Ray Barracks guest house, and eagerly anticipated our PCS to Fort Campbell, Kentucky. My “lupus” symptoms hadn’t changed. As far as I could tell, the condition remained isolated to my gum tissue, and I kept hoping it would go away.

By the end of August we were settled into our little rented house in Clarksville, Tennessee, and I began exercising. I felt fine and seemed relatively healthy except for the red rash that appeared across my nose and cheeks. I looked like Mrs. Tomato Head, especially after exercising. Needless to say, I was embarrassed to be seen at the fitness center.

In September the skin on my hands became extremely sensitive. It felt like third-degree sunburn each time I handled the window shade cords or attempted to tie my shoelaces. Any object with a ridged or slightly rough texture caused a burning sensation. When October brought three raised red bumps to my forehead, it was time to get this mysterious disease investigated more thoroughly. Unfortunately, my first few visits to primary care doctors and physicians’ assistants (PAs) resulted in frustration and serious doubt about the medical profession. The first doctor told me the skin changes would subside in a couple weeks and not to worry about them. One PA told me I had rosacea (reddening of the facial skin that usually occurs in older adults). My eyes got big, my anger rose up, my mouth wanted to yell, “You have got to be kidding me! This isn’t rosacea! You’re not serious, are you?” Instead, I simply asked, “Are you sure this isn’t something more like lupus? After all, that’s what other doctors have suggested.” Then she shot a wide-eyed gaze at me as if I had no business questioning her. Gimme a break. She couldn’t have been more wrong.

Eventually I landed in the office of a dermatologist who actually seemed to give a rip. Results of a skin biopsy led him also to “suspect” lupus. At this stage it only appeared to be discoid lupus – a less serious form that remains isolated to the skin. He did warn me, though, that it could become systemic, meaning full-blown Systemic Lupus Erythematosus (SLE). Hadn’t I heard that before from a certain periodontist in Hanau, Germany? Hmmm … I vaguely recall … Yes! Now two different doctors agreed with each other. In order to halt the progression of the disease, the dermatologist prescribed a drug called Plaquenil, an anti-malarial drug, interestingly enough. Did it help? I don’t remember, but I didn’t get malaria! Whew. Close call.

Following one of those uplifting dermatology appointments, I went to the restroom and examined my face in the mirror. Fear of the unknown swirled around within me as denial rose to the surface and evaporated. Reality was staring back at me. I inquired of the Lord, “Father, what’s happening to me? Is this rash going to scar me for life? Will it ever go away? Will I ever be the same? How long will this last?” The reflection in the mirror was of someone I never saw before and didn’t care to see repeatedly. I recalled the days when people complimented my skin. After this, could anyone bear to look at me?

God had the answers to my questions, and He chose to reveal them one step at a time, one symptom at a time, one day, one month, and one year at a time. The trial before me would be treacherous. It’s a good thing I didn’t know what was next.

TO BE CONTINUED …        

Women of PWOC, stay connected! In the coming weeks I will continue sharing my Journey of Transformation from being wounded and angry to healed and thriving. My purpose in sharing this story is to glorify God, to show the truth about Him, to display His goodness and provision in the midst of suffering, and to give you hope. No matter where you find yourself at this time in your life, be assured that God is trustworthy and faithful despite how you feel about Him. He does have good plans for you. “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future” (Jer. 29:11).

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Life Happens – Jesus Answers” is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org

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