Clash of the Specialists
It was November 2001 when I landed in the dermatologist’s office. Dr. Honl was kind, compassionate, professional, and deeply concerned about me. Days later I ended up in the rheumatologist’s office. Dr. Linney (name has been changed) wasn’t so concerned.
The battle of the specialists began.
The first time I visited Dr. Honl she carefully examined my skin. When she noticed my shins she asked, “Do you ever use lotion?” I replied, “Yes, but it takes too much energy to get down there and apply it. I don’t do it often.” The skin looked dry and scaly, almost with a marbled, shiny appearance.
She looked at my fingers and toes. Apparently the ulcers that were forming on the bottoms of my big toes did so because circulation was lacking. The Raynaud’s Syndrome was kicking in more and my hands and feet often turned purple. It was hard to keep them warm. The calcifications and burning sensations on my knuckles and finger tips definitely suggested a serious autoimmune problem.
After assessing me completely Dr. Honl announced, “I think you have a connective tissue disease called dermatomyositis. The skin lesions and muscle weakness are consistent with that.” I told her that other doctors stood firm on the diagnosis of lupus. She was certain that these new eruptions were not signs of lupus although there could possibly be some lupus mixed in. Was she correct?
An official diagnosis had to come from a rheumatologist – a specialist who deals with autoimmune diseases. I’d been here before. The rheumatologist I saw in Bowling Green, Kentucky, who seemed more interested in collecting his fees than he was in helping me, was the guy who gave the “official” lupus diagnosis. But now maybe I would have a doctor who would exert some effort in nailing down this mysterious disease process.
Tri Care assigned me to a rheumatologist named Dr. Linney who happened to be the same one my sister saw. Some doctors are better than others and both of us struck out with this one. After examining me he affirmed the standing diagnosis, “You have lupus.” I said, “Dr. Honl, my dermatologist, thinks that I show definite signs of dermatomyositis.” How did he respond?
Dr. Linney’s cold demeanor nearly made me shiver. There wasn’t a hint of warmth or concern in his expression. With a determined arrogance he refused to give Dr. Honl’s diagnosis a second glance. Something was wrong. I sensed in my spirit that this guy was putting his pride before his patient. It was clear to me that he stood firm on his opinion because he couldn’t handle conceding to a dermatologist – a female dermatologist at that. After all, he was the big rheumatologist and he had to be right! But was he?
Power and control. That’s what it was all about. Where did that leave me? I revisited my Merck Manual and read about dermatomyositis. It sounded scary. It could put me in wheelchair. It could take my life. But for the time being, lupus reigned.
A year from this point I finally would have the right answers, but until that time God had more things in store for me – a visit with a naturopathic physician was on the horizon.
THE JOURNEY CONTINUES:
Through life’s uncertainties I have learned to lean on Christ. If I never had any problems, if I got all the answers I wanted, and if everyone agreed and got along . . . I’d be living in Pleasantville where everything is black and white. Boring! I want color! I want vibrancy! I want to live.
Regrettably, living involves pain. Living involves unanswered questions. Living involves power struggles between people who won’t agree. Life is a big mystery held in the hands of a big God who has something bigger in mind than we can comprehend. Trusting and waiting are hard, but they are what I must do.
Since ancient times no one has heard, no ear has perceived, no eye has seen any God besides you, who acts on behalf of those who wait for him (Isaiah 64:4).
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Life Happens – Jesus Answers is a weekly column addressing the challenges we face in life, coupled with the presence and grace of Jesus, our One True Source of hope and peace. The column’s author, Laura Firtko, can be reached by email here: LifeHappens@pwoc.org
